Altered Bronchial Tubes

Or something like that. At least this doctor has a thought as to what the problem with my lungs are. We can rule out asthma, emphysema, chronic bronchitis, sarcoiditios, cancer, tumors, or anything of the sort.

He seems to be very knowledgeable although he did call me an enigma. lol I always knew I was a puzzle. No wonder i like to dribble information.

Well, Wednesday off for a CAT scan to determine if his hunch is correct. If it is, it should show up on the "film". But what does that mean? Will it slow the progression if the doctors know what is actually wrong. Will it enable me to be put into some medical trial? I don't know. All I know is it is almost impossible to get sufficient oxygen in my blood without the assistance of supplemental oxygen (which I am on) and as he said, perhaps we would be better able to provide some help in stalling the progression until stem cell therapy becomes available (adult stem cell - not the embryonic cells - which never proof to be any good anyway.)

He said if it is altered tubes then it would be a genetic thing and would have begun as a child. And he said this condition is extremely rare. Only a handful of people have it. At least then I would know what the damn problem is. But in all my research I never ran across this one. Apparently the tube fuse together which makes it impossilbe for the air to get in or the carbon dioxide to get out. He did say my lungs sounded clear (upper chambers) but the lower ones sound a mess! lol his words not mine.

So now to go off and research the altered bronchial tubes. And perhaps stem cell therapy too. And medical trials - you can't get in a trial if the doctor's don't know what you have. lol

A bit of renewed hope has found its way in my heart.

gayle